Vol 21 Nr 2 (2012): Biobanking: From vision to reality

Articles

• Innhold

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• Referees

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• Biobanking: from vision to reality

  Jennifer R. Harris, Anita Haugan, Isabelle Budin-Ljøsne

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• From Biobanks for health to Biobank Norway

  Camilla Stoltenberg, Isabelle Budin-Ljøsne, Jennifer R. Harris, Kristian Hveem

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• Biobanks in Norway – funding by the Research Council

  Berit Johne

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• How to kickstart a national biobanking infrastructure – experiences and prospects of BBMRI-NL

  M. Brandsma, F. Baas, P.I.W. de Bakker, E.P. Beem, D.I. Boomsma, J. Bovenberg, B. Bueno-de-Mesquita, C. van Duijn, L.A. Kiemeney, O. Klungel, P.W. de Leeuw, F.E. van Leeuwen, J. Ridder-Numan, R.P. Stolk, P.E. Slagboom, M. Swertz, C. Wijmenga, G.J.B. van Ommen

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• Adapting research to the 21st century – the Swedish Biobank Register

  L. Norlin, M. Fransson, S. Eaker, G. Elinder, J.-E. Litton

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• ELSI challenges and strategies of national biobank infrastructures

  Isabelle Budin-Ljøsne, Jennifer R. Harris, Jane Kaye, Bartha Maria Knoppers, Anne Marie Tassé

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• Danish biobank legislation, a simple approach?

  Kirsten Ohm Kyvik

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• Newborn screening programmes: Emerging biobanks?

  B.M. Knoppers, D. Avard, K. Sénécal

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• Embedding biobanks as tools for personalised medicine

  Jane Kaye

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• The Regional Research Biobank of Central Norway – “One biobank, many collections”

  Jostein Halgunset, Øyvind L. Mikkelsen, Haakon Skogseth

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• Scientific scope of integrating research activities in the Janus Serum Bank and Cancer Registry of Norway

  Hilde Langseth, Randi Gislefoss, Jan Ivar Martinsen, Steinar Tretli

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• How can clinical biobanks and patient information be adapted for research – Establishing a hospital based data warehouse solution

  Wenche Reed, Sissel Jor, Roger Bjugn

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• Managing incidental findings in population based biobank research

  Berge Solberg, Kristin Solum Steinsbekk

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• Navigating the perfect [data] storm

  M.J. Murtagh, G.A. Thorisson, S.E. Wallace, J. Kaye, I. Demir, I. Fortier, J.R. Harris, D. Cox, M. Deschênes, P. Laflamme, V. Ferretti, N.A. Sheehan, T.J. Hudson, A. Cambon Thomsen, R.P. Stolk, B.M. Knoppers, A.J. Brookes, P.R. Burton

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• Size matters: the ethical, legal, and social issues surrounding large-scale genetic biobank initiatives

  Klaus Lindgaard Hoeyer

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• Facilitating collaborative research: Implementing a platform supporting data harmonization and pooling

  Dany Doiron, Parminder Raina, Parminder Raina, François L’Heureux, Isabel Fortier

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• Biospecimen quality program in the biobank of the Norwegian Institute of Public Health

  Liv Paltiel, Jeanette Aarem, Siri Bækken, Nina K. Stensrud, Kari Harbak

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• DataSHIELD – shared individual-level analysis without sharing the data: a biostatistical perspective

  E.M. Jones, N.A. Sheehan, N. Masca, S.E. Wallace, M.J. Murtagh, P.R. Burton

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• Assessing the impact of nicotine dependence genes on the risk of facial clefts: An example of the use of national registry and biobank data

  Astanand Jugessur, Håkon K. Gjessing, Allen J. Wilcox, Truc Trung Nguyen, Roy M. Nilsen, Jeffrey C. Murray, Rolv T. Lie

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• Using offspring-parent triads to study complex traits: A tutorial based on orofacial clefts

  Astanand Jugessur, Øivind Skare, Jennifer Ruth Harris, Rolv Terje Lie, Håkon Kristian Gjessing

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• Peeking into the black box of privacy – biobank participants on the importance of recognition

  Lars Øystein Ursin, Kristin Solum Steinsbekk

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