Study Part NTDemQUALID

Name:
QUALID
Description:
Quality of life in late-stage dementia scale
Participation:
Responded: 719

Variables - Instruments - References

The Nord-Trøndelag Health Study (HUNT)

HUNT Research Centre
Forskningsveien 2
NO-7600 Levanger
Norway

Tel +47 74 07 51 80
hunt@medisin.ntnu.no
http://www.ntnu.no/hunt/

Organisation and quality assurance of the HUNT data is managed by Arnulf Langhammer and the Databank staff.

HUNT Databank database software development by Jon Heggland.

Variables

Each HUNT variable has a unique name, consisting of two parts separated by @. The first part is called the Topic Name, and indicates what the variable measures or asks about. The second part is called the Study Part Name, and indicates the source of the variable. Both parts are constructed by concatenation of suitable abbreviations selected from a list developed and maintained by HUNT Research Centre.

The Topic Name aims to paraphrase the question text or describe the measurement of the variable in a succinct way. Examples:

Topic NameExpansionQuestion Text / Variable Label
DiaEvDiabetes EverHave you ever had diabetes?
FeelNervLM Feel Nervous Last month During the last month, have you suffered from nervousness (felt irritable, anxious, tense or restless)?
BPDias1Blood Pressure Diastolic 1Diastolic blood pressure, measurement 1

The Study Part Name identifies the Study Part the variable belongs to. A Study Part is a collection of questions, measurements or analyses managed as a unit, e.g. in the form of a questionnaire or interview. The first abbreviation of a Study Part Name indicates which main survey it belongs to: NT1, NT2, NT3, NT4 (for HUNT1-4), YH1, YH2, YH3, YH4 (for the Young-HUNT studies) or others. Other important, frequently occurring abbreviations are Q (Questionnaire), I (Interview), M (Measurements), and BL (Baseline, indicating the common survey packages that the Nord-Trøndelag inhabitants were invited to). Examples:

Study Part NameExpansionStudy Part Description
NT3BLQ1HUNT3 Baseline Questionnaire 1HUNT3 survey main questionnaire
NT2DiaQ HUNT2 Diabetes Questionnaire HUNT2 supplementary questionnaire for diabetics
YH1LuIYoung-HUNT1 Lung InterviewYoung-HUNT1 Lung study interview

Identical or very similar questions/measurements frequently occur in multiple Study Parts, and in such cases the Topic Name is the same. Thus, AstEv@NT2BLQ1 and AstEv@NT3Lu1I both ask if the participant has or has ever had asthma, but the former in the baseline questionnaire of HUNT2, and the latter in the interview of phase 1 of the HUNT3 Lung Study.

Calm@NTDemQUALID

Question Text:
Virker følelsesmessig rolig og avslappet
English Question Text:
Appears emotionally calm and comfortable
Question Choices:
TextEnglish Text
1Mesteparten av dagenMost of each day
2Mer enn halvparten av dagenMore than half of each day
3Halvparten av dagenHalf of each day
4Mindre enn halvparten av dagenLess than half of each day
5Sjelden eller aldriRarely or never
Instrument:
QUALID

Cry@NTDemQUALID

Question Text:
Gråter
English Question Text:
Cries
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Bare som respons på ytre stimuli, sjeldnere enn en gang dagligOnly in respons to external stimuli; less than once each day
3Bare som respons på ytre stimuli, minst en gang dagligOnly in respons to external stimuli; at least once each day
4Uten åpenbar grunn, sjeldnere enn en gang dagligFor no apparent reason less than once each day
5Uten åpenbar grunn, en eller flere ganger dagligFor no apparent reason once or more each day
Instrument:
QUALID

Disco@NTDemQUALID

Question Text:
Viser kroppslig ubehag-han/hun vrir på seg, virker utilpass, skifter stadig stilling
English Question Text:
Appears physically uncomfortable-he/she squirms, writhes, frequently changes position
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Sjeldnere enn en gang dagligLess than once each day
3Minst en gang dagligAt least once each day
4Nesten halvparten av dagenNearly half of each day
5Mesteparten av dagenMost of each day
Instrument:
QUALID

EatEnjoy@NTDemQUALID

Question Text:
Nyter å spise
English Question Text:
Enjoys eating
Question Choices:
TextEnglish Text
1Ved de fleste måltider, og mellom måltiderAt most meals and snacks
2Ved minst to måltider dagligTwice a day
3Ved minst ett måltid dagligAt least once a day
4Sjeldnere enn dagligLess than once each day
5Sjelden eller aldriRarely or never
Instrument:
QUALID

Expr@NTDemQUALID

Question Text:
Har et ansiktsuttrykk som uttrykker ubehag-virker ulykkelig eller smertepåvirket
English Question Text:
Has a facial expression of discomfort-appears unhappy or in pain (looks worried, grimaces, furrowed or turned down brow)
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Sjeldnere enn en gang dagligLess than once each day
3Minst en gang dagligAt least once each day
4Nesten halvparten av dagenNearly half of each day
5Mesteparten av dagenMost of each day
Instrument:
QUALID

Irri@NTDemQUALID

Question Text:
Er irritabel og aggressiv (blir sint, banner, dytter eller forsøker å skade andre)
English Question Text:
Is irritable or aggressive (becomes angry, curses, pushes or attempts to hurt others)
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Bare som respons på ytre stimuli, sjeldnere enn en gang dagligOnly in response to external stimuli, less than once each day
3Bare som respons på ytre stimuli, minst en gang dagligOnly in response to external stimuli, at least once each day
4Uten åpenbar grunn, sjeldnere enn en gang dagligWithout cause less than once each day
5Uten åpenbar grunn, en eller flere ganger dagligWithout cause once or more each day
Instrument:
QUALID

Sad@NTDemQUALID

Question Text:
Virker trist
English Question Text:
Appears sad
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Bare som respons på ytre stimuli, sjeldnere enn en gang dagligOnly in respons to external stimuli; less than once each day
3Bare som respons på ytre stimuli, minst en gang dagligOnly in respons to external stimuli; at least once each day
4Uten åpenbar grunn. sjeldnere enn en gang dagligFor no apparent reason less than once each day
5Uten åpenbar grunn, en eller flere ganger dagligFor no apparent reason once or more each day
Instrument:
QUALID

Smi@NTDemQUALID

Question Text:
Smiler
English Question Text:
Smiles
Question Choices:
TextEnglish Text
1Spontant en eller flere ganger dagligSpontaneously once or more each day
2Spontant, men sjeldnere enn en gang dagligSpontaneously less than once each day
3Bare som respons på ytre stimuli, minst en gang dagligOnly in respons to external stimuli; at least once each day
4Bare som respons på ytre stimuli, sjeldnere enn en gang dagligOnly in respons to external stimuli; less than once each day
5Sjelden eller aldriRarely, if at all
Instrument:
QUALID

SocEnjoy@NTDemQUALID

Question Text:
Liker samvær med andre
English Question Text:
Enjoys interacting or being with others
Question Choices:
TextEnglish Text
1Nesten alltid, tar nesten alltid initiativ til samvær med andreAlmost always; almost always initiates interaction with others
2Mer enn halvparten av tiden, tar av og til initiativ til samvær med andreMore than half the time; sometimes initiates interaction with others
3Halvparten av tiden, tar aldri initiativ til samvær med andre, men motsetter seg ikke samvær med andreHalf the time; never initiates interaction, but doesn't resist interacting with others
4Mindre enn halvparten av tiden, motsetter seg ofte samvær med andreLess than half the time; often or frequently resists interacting with others
5Sjelden eller aldri, motsetter seg nesten alltid samvær med andreRarely or never; almost always resists interacting with others
Instrument:
QUALID

TouEnjoy@NTDemQUALID

Question Text:
Liker berøring/kroppskontakt
English Question Text:
Enjoys touching/being touched
Question Choices:
TextEnglish Text
1Nesten alltid, tar nesten alltid initiativ til berøringAlmost always; almost always initiates touching
2Mer enn halvparten av tiden, tar av og til initiativ til berøringMore than half the time; sometimes initiates touching
3Halvparten av tiden, tar aldri initiativ til berøring, men motsetter seg ikke å bli berørtHalf the time; never initiates touching, but doesn't resist touching
4Mindre enn halvparten av tiden, motsetter seg ofte å bli berørt/bli tatt påLess than half the time; often or frequently resists touching/being touched
5Sjelden eller aldri, motsetter seg nesten alltid berøring/bli tatt påRarely or never; almost always resists touching/being touched
Instrument:
QUALID

Voic@NTDemQUALID

Question Text:
Kommer med ytringer eller lager lyder som tyder på misnøye, tristhet eller ubehag
English Question Text:
Makes statements or sounds that suggest discontent, unhappiness or discomfort (complains, groans, screams)
Question Choices:
TextEnglish Text
1Sjelden eller aldriRarely or never
2Bare som respons på ytre stimuli, sjeldnere enn en gang dagligOnly in response to external stimuli; less than once each day
3Bare som respons på ytre stimuli, minst en gang dagligOnly in response to external stimuli; at least once each day
4Uten åpenbar grunn, sjeldnere enn en gang dagligWithout cause less than once each day
5Uten åpenbar grunn, en eller flere ganger dagligWithout cause once or more each day
Instrument:
QUALID

Instruments

QUALID

Name:
Quality of Life in Late-stage Dementia
Description:
The QUALID assesses quality of life (well-being) in severe dementia. The assessment is based on an interview with the caregiver who is most familiar with the patient. The scale consists of 11 items which may have a score from 1 to 5, producing a sum score ranging from 11 to 55. A higher score indicates poorer quality of life. (Weiner et al., 2000)