Study Part NTDemQUALID
- Name:
- QUALID
- Description:
- Quality of life in late-stage dementia scale
- Participation:
- Responded: 719
Variables - Instruments - References
The Nord-Trøndelag Health Study (HUNT)
HUNT Research Centre
Forskningsveien 2
NO-7600 Levanger
Norway
Tel +47 74 07 51 80
hunt@medisin.ntnu.no
http://www.ntnu.no/hunt/
Organisation and quality assurance of the HUNT data is managed by Arnulf Langhammer and the Databank staff.
HUNT Databank database software development by Jon Heggland.
Variables
Each HUNT variable has a unique name, consisting of two parts separated by @. The first
part is called the Topic Name, and indicates what the variable measures or asks about. The
second part is called the Study Part Name, and indicates the source of the variable. Both
parts are constructed by concatenation of suitable abbreviations selected from a list
developed and maintained by HUNT Research Centre.
The Topic Name aims to paraphrase the question text or describe the measurement of the
variable in a succinct way. Examples:
Topic Name | Expansion | Question Text / Variable Label |
DiaEv | Diabetes Ever | Have you ever had diabetes? |
FeelNervLM |
Feel Nervous Last month |
During the last month, have you suffered from nervousness (felt irritable, anxious,
tense or restless)?
|
BPDias1 | Blood Pressure Diastolic 1 | Diastolic blood pressure, measurement 1 |
The Study Part Name identifies the Study Part the variable belongs to. A Study Part is a
collection of questions, measurements or analyses managed as a unit, e.g. in the form of a
questionnaire or interview. The first abbreviation of a Study Part Name indicates which main
survey it belongs to: NT1, NT2, NT3, NT4 (for HUNT1-4), YH1, YH2, YH3, YH4 (for the Young-HUNT studies)
or others. Other important, frequently occurring abbreviations are Q (Questionnaire), I
(Interview), M (Measurements), and BL (Baseline, indicating the common survey packages that
the Nord-Trøndelag inhabitants were invited to). Examples:
Study Part Name | Expansion | Study Part Description |
NT3BLQ1 | HUNT3 Baseline Questionnaire 1 | HUNT3 survey main questionnaire |
NT2DiaQ |
HUNT2 Diabetes Questionnaire |
HUNT2 supplementary questionnaire for diabetics |
YH1LuI | Young-HUNT1 Lung Interview | Young-HUNT1 Lung study interview |
Identical or very similar questions/measurements frequently occur in multiple Study Parts,
and in such cases the Topic Name is the same. Thus, AstEv@NT2BLQ1 and AstEv@NT3Lu1I both
ask if the participant has or has ever had asthma, but the former in the baseline
questionnaire of HUNT2, and the latter in the interview of phase 1 of the HUNT3 Lung Study.
- Question Text:
- Virker følelsesmessig rolig og avslappet
- English Question Text:
- Appears emotionally calm and comfortable
- Question Choices:
-
№ | Text | English Text |
1 | Mesteparten av dagen | Most of each day |
2 | Mer enn halvparten av dagen | More than half of each day |
3 | Halvparten av dagen | Half of each day |
4 | Mindre enn halvparten av dagen | Less than half of each day |
5 | Sjelden eller aldri | Rarely or never |
- Instrument:
- QUALID
- Question Text:
- Gråter
- English Question Text:
- Cries
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Bare som respons på ytre stimuli, sjeldnere enn en gang daglig | Only in respons to external stimuli; less than once each day |
3 | Bare som respons på ytre stimuli, minst en gang daglig | Only in respons to external stimuli; at least once each day |
4 | Uten åpenbar grunn, sjeldnere enn en gang daglig | For no apparent reason less than once each day |
5 | Uten åpenbar grunn, en eller flere ganger daglig | For no apparent reason once or more each day |
- Instrument:
- QUALID
- Question Text:
- Viser kroppslig ubehag-han/hun vrir på seg, virker utilpass, skifter stadig stilling
- English Question Text:
- Appears physically uncomfortable-he/she squirms, writhes, frequently changes position
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Sjeldnere enn en gang daglig | Less than once each day |
3 | Minst en gang daglig | At least once each day |
4 | Nesten halvparten av dagen | Nearly half of each day |
5 | Mesteparten av dagen | Most of each day |
- Instrument:
- QUALID
- Question Text:
- Nyter å spise
- English Question Text:
- Enjoys eating
- Question Choices:
-
№ | Text | English Text |
1 | Ved de fleste måltider, og mellom måltider | At most meals and snacks |
2 | Ved minst to måltider daglig | Twice a day |
3 | Ved minst ett måltid daglig | At least once a day |
4 | Sjeldnere enn daglig | Less than once each day |
5 | Sjelden eller aldri | Rarely or never |
- Instrument:
- QUALID
- Question Text:
- Har et ansiktsuttrykk som uttrykker ubehag-virker ulykkelig eller smertepåvirket
- English Question Text:
- Has a facial expression of discomfort-appears unhappy or in pain (looks worried, grimaces, furrowed or turned down brow)
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Sjeldnere enn en gang daglig | Less than once each day |
3 | Minst en gang daglig | At least once each day |
4 | Nesten halvparten av dagen | Nearly half of each day |
5 | Mesteparten av dagen | Most of each day |
- Instrument:
- QUALID
- Question Text:
- Er irritabel og aggressiv (blir sint, banner, dytter eller forsøker å skade andre)
- English Question Text:
- Is irritable or aggressive (becomes angry, curses, pushes or attempts to hurt others)
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Bare som respons på ytre stimuli, sjeldnere enn en gang daglig | Only in response to external stimuli, less than once each day |
3 | Bare som respons på ytre stimuli, minst en gang daglig | Only in response to external stimuli, at least once each day |
4 | Uten åpenbar grunn, sjeldnere enn en gang daglig | Without cause less than once each day |
5 | Uten åpenbar grunn, en eller flere ganger daglig | Without cause once or more each day |
- Instrument:
- QUALID
- Question Text:
- Virker trist
- English Question Text:
- Appears sad
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Bare som respons på ytre stimuli, sjeldnere enn en gang daglig | Only in respons to external stimuli; less than once each day |
3 | Bare som respons på ytre stimuli, minst en gang daglig | Only in respons to external stimuli; at least once each day |
4 | Uten åpenbar grunn. sjeldnere enn en gang daglig | For no apparent reason less than once each day |
5 | Uten åpenbar grunn, en eller flere ganger daglig | For no apparent reason once or more each day |
- Instrument:
- QUALID
- Question Text:
- Smiler
- English Question Text:
- Smiles
- Question Choices:
-
№ | Text | English Text |
1 | Spontant en eller flere ganger daglig | Spontaneously once or more each day |
2 | Spontant, men sjeldnere enn en gang daglig | Spontaneously less than once each day |
3 | Bare som respons på ytre stimuli, minst en gang daglig | Only in respons to external stimuli; at least once each day |
4 | Bare som respons på ytre stimuli, sjeldnere enn en gang daglig | Only in respons to external stimuli; less than once each day |
5 | Sjelden eller aldri | Rarely, if at all |
- Instrument:
- QUALID
- Question Text:
- Liker samvær med andre
- English Question Text:
- Enjoys interacting or being with others
- Question Choices:
-
№ | Text | English Text |
1 | Nesten alltid, tar nesten alltid initiativ til samvær med andre | Almost always; almost always initiates interaction with others |
2 | Mer enn halvparten av tiden, tar av og til initiativ til samvær med andre | More than half the time; sometimes initiates interaction with others |
3 | Halvparten av tiden, tar aldri initiativ til samvær med andre, men motsetter seg ikke samvær med andre | Half the time; never initiates interaction, but doesn't resist interacting with others |
4 | Mindre enn halvparten av tiden, motsetter seg ofte samvær med andre | Less than half the time; often or frequently resists interacting with others |
5 | Sjelden eller aldri, motsetter seg nesten alltid samvær med andre | Rarely or never; almost always resists interacting with others |
- Instrument:
- QUALID
- Question Text:
- Liker berøring/kroppskontakt
- English Question Text:
- Enjoys touching/being touched
- Question Choices:
-
№ | Text | English Text |
1 | Nesten alltid, tar nesten alltid initiativ til berøring | Almost always; almost always initiates touching |
2 | Mer enn halvparten av tiden, tar av og til initiativ til berøring | More than half the time; sometimes initiates touching |
3 | Halvparten av tiden, tar aldri initiativ til berøring, men motsetter seg ikke å bli berørt | Half the time; never initiates touching, but doesn't resist touching |
4 | Mindre enn halvparten av tiden, motsetter seg ofte å bli berørt/bli tatt på | Less than half the time; often or frequently resists touching/being touched |
5 | Sjelden eller aldri, motsetter seg nesten alltid berøring/bli tatt på | Rarely or never; almost always resists touching/being touched |
- Instrument:
- QUALID
- Question Text:
- Kommer med ytringer eller lager lyder som tyder på misnøye, tristhet eller ubehag
- English Question Text:
- Makes statements or sounds that suggest discontent, unhappiness or discomfort (complains, groans, screams)
- Question Choices:
-
№ | Text | English Text |
1 | Sjelden eller aldri | Rarely or never |
2 | Bare som respons på ytre stimuli, sjeldnere enn en gang daglig | Only in response to external stimuli; less than once each day |
3 | Bare som respons på ytre stimuli, minst en gang daglig | Only in response to external stimuli; at least once each day |
4 | Uten åpenbar grunn, sjeldnere enn en gang daglig | Without cause less than once each day |
5 | Uten åpenbar grunn, en eller flere ganger daglig | Without cause once or more each day |
- Instrument:
- QUALID
Instruments
- Name:
- Quality of Life in Late-stage Dementia
- Description:
- The QUALID assesses quality of life (well-being) in severe dementia. The assessment is based on an interview with the caregiver who is most familiar with the patient. The scale consists of 11 items which may have a score from 1 to 5, producing a sum score ranging from 11 to 55. A higher score indicates poorer quality of life. (Weiner et al., 2000)